I encourage you to keep up the good work DEBRA is doing. Your efforts are an inspiration and I know that Alex would be proud. I wish you all the best.
Sincerely Bill Clinton
You have done so much over the years to raise funds for EB research and have my deepest admiration for your efforts.
You were Alex’s greatest champion and I am sure she was very proud of your great love for her.
With all my best wishes.
To describe Robin as a tireless campaigner for the DEBRA charity completely understates his contribution.
His efforts and dedication to the cause has been nothing short of phenomenal.
Simon Mackenzie-Smith former of DEBRA appeals council.